please pray for a miracle

dear friends-
we've escaped town for a few days to simply try to escape & comprehend what is going on. however, we haven't been able to completely escape as we continue to hear from doctors. Reagan & I are determined to keep our marriage a priority & so I asked the drs today if we could move our thursday appts as that is our anniversary & we would prefer not to be so emotionally exhausted that we can't celebrate our anniversary & i have a fun maternity dress i've been saving that i would like to wear without swollen eyes if possible.
however, the drs feel that is it urgent that we keep these appts for various reasons.
my ob gave us some good news & some scarier news. we desperately need your prayers & we don't even know how to ask you to pray. apparently, they are no longer so sure that we are dealing with the syndrome the baby was originally diagnosed with. He said it could be on a spectrum of all kinds of things- from correctable to lethal. we are absolutely terrified of losing our child. we can not even process this right now. please please please beg God for a miracle for us & our baby. please pray that this is non-lethal. please beg him for the life of our child- we desperately want to know & hold & love this baby. please pray it is correctable surgically. please pray that they are able to give us some answers on thursday or friday - without further testing. there are great risks associated with further testing & so we are not sure we are willing to go through that. please pray that the baby cooperates during the ultrasound on thursday so that they can see & measure every single thing they need to see without further or more invasive testing. please pray for my health - we're not sleeping very well & my dr may prescribe some meds to help with that. i have also lost some weight & obviously am very stressed. the baby continues to be extremely active so that is good but please pray that i will somehow feel peace & that this baby will be protected from my stress. it is hard to balance this with taking care of a baby still inside me - i don't want to eat but need to; i can't sleep but need to, etc.
we are complete wrecks for the most part- sometimes feeling numb, sometimes desperate to feel numb, sometimes hopeful & looking forward to doing new things with our baby, sometimes scared out of our minds.
by the way, people have asked if we've "opened the envelope." we have not - we want to have a great surprise on our baby's birthday - we realize we may be in for a lot of surprises so we need this one for that day. it's still a surprise- i may refer to the baby as a boy but that is for the sake of ease in conversation.
thank you for praying - we desperately need you right now - love, katie & reagan
psalm 139- our baby is wonderfully & fearfully formed
psalm 22- he brought me out of the womb & made me trust in You