Thankful

Today, after casting, Ellie & I picked up R & headed north to meet our new geneticist.  It was a grueling day.  I haven't begun to even process all of the information related to both of my precious babies.

We really liked this geneticist.  He was knowledgeable and compassionate.  We present a baffling case that so far no doctor in multiple states has been able to figure out.

He has some interesting theories and plans on doing some serious research.  

He suggested some testing for us and answered some of my questions.  Other questions he is unable to answer at this point but he plans on researching.  I think we will  have a good ongoing relationship with this doctor.  He was able to give me information about various forms of treatment and answer my daily living questions.

I have dreaded this appointment for so long.  I have been fearful of what I might learn.  

More than any other doctor we've seen, he was able to offer me evidence that would indicate Ellie does not have a terminal diagnosis.  While of course no doctor will guarantee life, he said that he was "very optimistic" for Ellie.  He told me I can "rest easy now" regarding her life.  He does not see the physical indicators that would be typically visible with a terminal diagnosis.  

He felt like Ellie had a more minor version of the complications that can be so serious.

I am thankful.  I am blessed.  I do not take my days and nights and moments with either of them for granted.  

And then Ellie giggled for the first time tonight while laying on the floor beside Will.  

Ellie, who has been colicky for two weeks, is sleeping soundly and peacefully.  I think she likes having her Daddy around.  I think Will likes having his Daddy around too - he is so happy and obedient and pleasant and easy when Daddy is here.  The discipline problems we have been struggling through during the week aren't really present when we are a regular family again.

I kind of like having him around too. ;)

I just can't resist a little baby bottom - especially one with a flower on it.  Will has enjoyed patting her soft baby bottom sunflower today.